In Honour of Emma- Our First Annual Fundraiser Begins 

Emma has forever impacted our hearts and minds, changing the course of our lives in the most profound way. Today, we invite you to this page to learn, support, and celebrate Emma, her Glut1 Deficiency diagnosis, and her journey—along with many others—on a Medical Ketogenic Diet.
We’d love to share a little bit of Emma’s story to help you understand why we created this fundraiser for KetoSuite, and why your support means the world to us.

Emma’s Journey

At around 4 months old, Emma began experiencing strange “episodes.” We made countless trips to the hospital with no answers in sight—we felt lost and confused. At 8 months, thanks to a wonderful neurologist, her seizures were finally under control, and we began to see glimmers of our Emma again.
But like many parents of medically complex children, we knew deep down—this wasn’t the end of the story.
In February 2025, genetic testing confirmed Emma has Glut1 Deficiency Syndrome, a rare neurological condition that affects glucose transport to the brain. This diagnosis gave us the clarity we needed to pursue the right treatment.

Becoming Advocates

As many families in our position know, sometimes you have to fight to get your child the care they need. I (Emma’s mom) reached out to every neurologist at our hospital, advocating urgently for Emma to start the Medical Ketogenic Diet—a treatment known to help Glut1 patients thrive.
By April 2025, our family began this challenging new journey together.
Let me be clear—this is not a trendy lifestyle “KETO” diet. This is a medically prescribed, highly controlled nutrition plan that requires every gram of food to be weighed with precision, allowing Emma’s brain to use ketones as fuel instead of glucose.
As a trained professional, I was ready to apply my expertise to help Emma—but nothing could have prepared me for the level of work and dedication this diet would require.

Enter Ketosuite – A Lifesaver

To our immense relief, our children's hospital had an incredible team of experienced dietitians already working hard to support families like ours. That’s when we were introduced to KetoSuite—a web-based application created with passion and care to help families manage the complexities of the Medical Ketogenic Diet.
Ketosuite became my lifeline.
Before Ketosuite, many families were relying on Excel spreadsheets—or even paper and pen—to plan meals and calculate. In today’s digital age, that simply shouldn’t be the case.

Please note: At this time, we are unable to issue tax receipts as Ketosuite is still in development. Our goal for the upcoming year is to obtain charitable status to change that.

Why We Need Your Help

KetoSuite is still a young company, not yet accessible to everyone. That’s why we’re raising funds—to ensure this incredible tool becomes sustainable and widely available.
Your donations will help:
•    Support the ongoing development of KetoSuite

•    Create a Medical Ketogenic Diet Recipe Book
Our goal is to raise $10,000, and every single donation makes a difference.
We are endlessly grateful for your support—your contribution will directly impact families navigating this complex journey.
 

From the bottom of our hearts—thank you for being part of Emma’s journey and helping create a brighter, more supported path for all families implementing a Medical Ketogenic Diet in their home.